TopiaSearch: Health: Conditions and Diseases: Genetic Disorders: Personal Pages (11) Cystic Fibrosis@ (57) Down Syndrome@ (21) Alpha1 Antitrypsine Deficiency - One man's perspective and journey with A1AD and a list of links and other resources from the internet. Ashly's Skeletal Dysplasia - A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites. Treacher Collins Syndrome - A Personal View - UK based website, containing information about the disorder, with helpful links and discussion forum. Daniels Neurofibromatosis page - A child living with neurofibromatosis and optic glioma with links. Maddy's Page - The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites. Taryn's World: About Switches - Personal page for kids and parents about genetic disorders, especially mannosidosis. GotGod?com - A family and memorial website dedicated to their son, Nathan Philip Batman, who passed away as a result of Trisomy 13, or Patau's Syndrome. Robert Kenneth Picklesimer - Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project. Joy's Page - Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly. XXXXY Syndrome - Information on this rare chromosomal abnormality. Story of Robert Purkis - A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life. Additional categories: Tarte Larin video capture card Carts college graduation gifts

Personal Pages