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TopiaSearch: Health: Conditions and Diseases: Genetic Disorders: Cystic Fibrosis (165)
See Also:
Cystic Fibrosis in the Ukraine Future Force - Irish publication including articles on home IVs, nutrition, exercise and first person accounts of living, dying and transplantation. Cyber Campus - The Cyber Campus is a computer course aiming to empower and educate people with Cystic Fibrosis. From the Cystic Fibrosis Association of Ireland (CFAI). CF Advantage - The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz NHLBI, Facts About Cystic Fibrosis PulmonologyChannel - Information on cystic fibrosis. Mamas Health - Find out what Cystic Fibrosis is, the symptoms and the causes. MyCysticFibrosis - Log on for Living With Cystic Fibrosis - Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. Cystic Fibrosis Resource Center - Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards. Cystic Fibrosis I.Q. Test - Test what you know about cystic fibrosis. Cystic Fibrosis Health FactSheet - Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format Cystic Fibrosis Links - Cystic Fibrosis Links and Information Yahoo! Health - Cystic Fibrosis The Breathing Room - Guidance about the art of living with cystic fibrosis. Cystic Fibrosis Management - Article detailing therapeutic options for co-management. Manual for Cystic Fibrosis Patients and their Families - From the European Thematic Network for Cystic Fibrosis. In depth information in PDF. Jewish Genetic Diseases - Cystic Fibrosis - Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening. It Can't Be CF - For those going through the Cystic Fibrosis (CF) diagnosis process. Symptoms, misconceptions, diagnosis stories, (one child with failure to thrive, another misdiagnosed with asthma), general information, links and resources are included. Cystic Fibrosis Western Australia - Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. Living with Cystic Fibrosis - Site by a person with CF. Includes advice on hospitalizations, relationships, social life and growing up with CF. Also includes a discussion board. CF Prescriber - Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease. Cindy's Friends - Walking for Cystic Fibrosis, Working for Cure Found - Information about Cystic Fibrosis, progress being made towards a cure, and fundraising efforts in Tennessee. General Practice Notebook - Cystic fibrosis - Clinically-oriented information. National Cystic Fibrosis Awareness Committee (NCFAC) - This committee exists to serve as an instrument for advancing the public's awareness of the genetic disease, Cystic Fibrosis. Site includes mission statement and message board. The Spirit of Lo - Inspirational Book - Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child. Cystic Fibrosis Medicine - Non profit web site which provides free information to professionals involved with the treatment of cystic fibrosis. An open access (PUBLIC) section is also available to both patients and family cysticfibrosis.com - Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events. Saving Russian Children with CF - Article about saving Russian children with CF. 65 Roses - Cystic Fibrosis news, links and chat room. Salvay Healthcare Ltd., UK - This site has been produced by Solvay Healthcare Ltd., and is designed to be a useful source of information for cystic fibrosis patients, parents, doctors and other carers. Cystic Fibrosis: Gene to Product - The most frequently occurring mutation, delta-F508, is a single amino acid deletion in exon 10 which codes for a portion of the first nucleotide binding function (NBF-1) domain of the cystic fibrosis transmembrane conductance regulation protein. A list of other CF mutations is available. Sixty Five Roses - Cystic Fibrosis Resource Center - Provides support, information and answers about this disease. CF news, events, links and chat rooms. Home Page-Harminder - Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true. IRRI SHARK's Page - The "65 roses" story. A-Z Directory of Cystic Fibrosis Resources - Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
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